guest posts / health + fitness / life / wellness

“a moment changes everything”: jay’s story

• by Awesome Guest Blogger

[Scroll down to the blue text to read Jay’s January 2013 update!]

When I signed up for Physical Activity: Promotion and Adherence last spring, I had no idea that the mysterious Staff-1* at the time would be well beyond ‘just another instructor’.

The mystery instructor turned into Jay Greenfeld, who through lecture and many e-mail conversations, has not only helped me work through various things, but also to think of things differently in regard to not only exercise, but life, and continue rolling on the journey of changing myself for the better.  Additionally, the class was the most tangible and enjoyable experience I’ve had yet in university (can I take it again?!).  [And no, it’s not just because he throws snacks out to people during class. Although that is freaking awesome. Except he doesn’t throw the apples. Related: highly enjoyed the discussions on Mean Girls, cereal and how nobody ever uses the stairs].

After our class discussion on exercise and chronic disease, I was moved to blog my exercise and asthma story and opened up the floor to others who choose to own their disease through exercise to share their stories (I’ve been passing some of those stories along to Jay, too, by the way!)

During the lecture, Jay shared the Sparknotes version of his story of being diagnosed with type one diabetes in August 2011, and how that fits into where he’s at in regard to exercise and life.  As Jay said in class “Yes, it does suck, and yes it is interesting” . . . to which I couldn’t agree more.

I’m amped to have Jay telling his story, with the shared hope between us that it may help somebody else in a similar situation.  Take it away, Jay!

—

jg3.jpgWe all hope to live fulfilling, memorable, and healthy lives. Leading healthy lives tends to be the most difficult for many. I was fortunate to be involved in athletics throughout my life starting at the age of 4. Although being born premature delayed the onset of the typical teenage growth spurt, I enjoyed the high level to which I was able to compete in Ice Hockey, Soccer, Tennis, and Swimming. After high school finished, I modified my participation in athletics to focus on coaching and used my personal time to exercise. While engaging in regular exercise, I chose to optimize my diet by eating balanced colorful meals. Professionally, I was fortunate to progress through an animated experiential academic journey that led me from the University of Winnipeg for college, New York University for my Masters, the University of Iowa for my Doctoral degree, and a 1-year internship at the University of South Florida as the final requirement for my degree in Counseling Psychology. I was blessed to apply my health and wellness strategies and stress management techniques to hundreds of University students and college athletes.

According to my friends I was the epitome of healthy living; abstaining from drugs and cigarettes throughout my life and maximizing each moment with the people I was fortunate to interact with. When questioned why I chose to live this energetic lifestyle (intentionally trying to motivate people of all ages to optimize their health), I responded: “Life can change in a moment and I want to ensure I have no regrets.” Those words were the very words I shared with a friend of mine mere moments after I finished the final requirement for my Doctoral degree. With my car packed it was time for me to drive from Tampa, FL to Winnipeg, MB and begin my formal career. I was set to teach health and wellness classes at the University of Winnipeg and work at a group practice doing psychotherapy for varying ages of the population.

It is important to note that my car was repaired after a significant accident in April 2011 that led to $7,000 damage, 24 hours in the ER, and $10,000 in medical bills (all covered by the other driver’s insurance). Four days later I flew to Iowa to defend my dissertation and celebrate my birthday with a few very important people in my life. Well, that was when things started to shift. I had to stop exercising to focus on the rehabilitation from the car accident and simultaneously started to lose weight for the first time in my life. I figured I was losing weight because I had to stop exercising, but when I lost 25 pounds between May 2011 and August 2011, I knew something was wrong. Nevertheless, I began the 2500 mile journey to Canada.

My last stop on my journey was visiting one of my closest friends in Des Moines and as we were eating dinner one night I said: “Something is happening to my body, but I don’t know what.” I continued the journey and had a delicious home cooked meal with a friend of mine and her mom in rural Iowa. It was a perfect ending, an exclamation point on my studies and moments in the U.S. with the most authentic conversation while feeling at home during this lunch. I realized one of the main reasons I decided to accept the job offers in Canada was because of family. So, I drove off into the sunset overlooking the breadth of corn fields that spanned the Hawkeye state. I left Iowa knowing I accomplished everything I wanted to do and was eager yet patient to return home to celebrate my sister’s 30th birthday with her.

Well if “a moment changes everything.” ….that moment happened once I crossed the border. For some reason between the border and my house (approximately 75 miles), I had to stop and use the facilities 3 times. I eventually arrived in Winnipeg and within 24 hours of rolling over the border, I was embraced by a wave of family members. I attended a wedding the next day and said to a friend of mine, “I am not well.” I called my uncles from the wedding and told them I needed some blood work because my energy was depleting as was my body weight. At this point I had lost 12% of my total body weight since April.

I met one of my uncles at the hospital at 8am the next morning and when he saw me he thought I was fading and he has no idea how I drove across the country looking the way I did. August 15, 2011 I had blood tests at 9:00 am, 10:00 am I had a meeting with the University of Winnipeg to review the syllabi I created for my courses, and came home at 10:30 to a voicemail: “Jay, you need to come back to the hospital, I have your blood test results. You have Type I Juvenile Diabetes.” I returned to the hospital and met with an endocrinologist and he told me that my blood sugars were higher than 36.0 mmol/L (close to 700 mg/dL). As the Diabetes Education Centre was teaching me how to use insulin, my legs and arms started to go numb, my vision became blurry, and my mouth and face were drying out along with the rest of my body with muscles protruding from my skin. I was going into shock and by 11:20 am I was carted off to the ER wearing nothing but a t-shirt, jeans and sunglasses as it was too painful to wear sandals. After the hospital staff spent 3 days rehydrating me I left and noticed that my car was hit from behind in the parking lot while in the ER. I returned to the hospital the next day because of boils on my head and face that were from a bacterial infection I developed from being in the hospital.

I have no idea how this diagnosis happened, but more so how long I was living with it AND how fortunate I am to be alive. As I was going into shock, thank goodness for the mindfulness breathing stuff I was doing in the ER otherwise who knows how much worse it would have got. So there it was– the moment my life changed forever. It is not life ending, just life modifying. Just because I will need to modify how I live (i.e., taking daily shots of insulin), I will not change my life or my perspective. I am fortunate that I have been leading a healthy lifestyle (with intentional eating and exercise) throughout my days which led the dietician to speculate that I was some sort of anomaly. After the brief dance with death I resumed physical therapy to repair my shoulder, back, and neck from the car accident, and made any attempt to get back to my “normal” life. In reality I was FAR from getting back to normal as I would come home from physical therapy with feelings of nausea and exhaustion.

I told my team of nurses and doctors, “Just tell me what I need to do and where my blood sugar levels need to be at and I will do it.” They gave me the information yet what they failed to mention was my blood sugars can be a little higher a couple hours after eating. Within weeks I was able to get my blood sugars between 3.5-5.5 mmol/L (64-100 mg/dL) and thought that is what they informed me would work. I began teaching and doing clinical work after Labor Day. Throughout my working days, I spoke with people at the hospital they provided encouragement for my numbers and amazement at how quickly I was able to have the numbers so close and so consistent. I took that encouragement and what I thought was progress and proceeded to live my life while most mornings and some days I had levels lower than 3.0 mmol/L (~75mg/dL).

So the days continued and I was having sugar lows 3-4 times/day leading me to feel faint, dizzy, and increases and decreases in body temperature. To compensate I had to treat each low with a lot of sugar and in addition to my meals I was eating the equivalent of 2.5 candy bars per day for 4 months. To help gain the original weight lost during the summer I was also given meal replacements as snacks. So, my body weight increased to 20 pounds higher than it had ever been in my life.

Let’s just say my first 100 days in Canada were not necessarily what I had hoped for (physiologically). Although work was extremely enjoyable in large part because of the people I am fortunate to collaborate with, life outside of work had been nonexistent due to the lovely August diagnosis. Although I felt I was making good progress with the blood sugars and such after attending 3 weddings in August– that was not the case which prevented me from going to Vancouver & Israel for the 4th and 5th weddings in 90 days. There had not been 1 day where I went without multiple lows. With the blood glucose meters available sometimes they are not 100% accurate and I was teaching in the afternoons with blood sugars closer to 3.0 mmol/L (less than 70mg/dL). Some of my lows (especially in the mornings) were borderline seizures and risk of a coma.

Unfortunately, the lows led me to feeling exhausted, blurred, and no energy to even think about doing anything after work. I reserved all of my energy for my students and clients and when I got home it was bedtime. I was passively moving through life in a fog, yet somehow able to function basically driving with the physiological gas tank on empty. Throughout the first 100+ days while living in Canada, I was the complete opposite of who I normally am and the antithesis of my book. I often limited my social phone calls to one per week due to the lack of energy to engage in a conversation where I am most present the way I want to be. If it wasn’t for email, text, and Facebook, I would most likely just not have the energy to be in touch with very many people. My social interaction outside of work focused on 11 hours of weekly physical therapy to repair my body and even that was an internal struggle to stay present, but I tried. I was hopeful that the physical therapy would help give me a sign of hope that something was progressing even if it required whatever little energy I had left.

Mentally and emotionally I was obviously frustrated at times, yet I did not isolate myself because I don’t like people or don’t want to see people. I just did not have the energy to do those things. I was not depressed or anxious about the current or future moments. I remained hopeful that things will continue to normalize as there are millions of people with this diagnosis. Physically, if it was not for physical therapy, I have NO IDEA where I would be. For the first time since April, I started to exercise at 25% four months after the diagnosis–a miracle really. Socially, with great difficulty, I made a few attempts to have the energy to connect with friends and people I care most about yet that has been limited and I remain optimistic it will improve. I had a few visitors come to town and tried to spend time with them after work. However, I was so disconnected from myself that although I felt my mind and heart were present in the conversations, my body was so distant that I was numb or void or any emotional and physical connection to . . . life.

By December 2011, I opted out of attending my graduation ceremony at the University of Iowa as I did not have the energy to even talk never mind fly. My skin was breaking out, my energy was depleted, my eyes were black and red, and at night my vision was often blurred and body helpless. I had learned I was taking too much insulin and HOW to adjust for that in a safe way. In August 2011 I was taking a total of 53 total units of insulin throughout each day and having 3-4 lows per day. The nurses adjusted my insulin slowly to 45 units per day. After a conversation with one of my first friends from pre-kindergarten in mid-December, I changed my total insulin intake to help increase the blood sugars and prevent the frequent lows. Currently, I am not taking any insulin and exercising at 70% until I return to my normal flexibility. The drastic shift in my insulin intake compounded by more routine exercise made significant changes in my ability to function at my pre-diagnosis levels. I also recognize and understand the “honeymoon” phase and know that I will return to taking insulin at some undetermined date. If it was not for that phone call with my friend and a shift in my primary endocrinologist, I have no idea if my energy would have returned as it may have been too late. As of the beginning of January I began to slowly resume normal cognitive, emotional, and physical functioning without experiencing the numbness, pain, and fog.

[Editor’s note: The following paragraphs are an update to Jay’s story, added August/October 2012 and January 2013] I returned from a wedding in late January with strep throat and the flu. After recovering and ending my routine physical therapy, I began trigger point acupuncture on my shoulder, neck, and back, 3 times/week, which helped tremendously. I had also developed excruciating pain ion my lower left abdominal region which was later diagnosed as myofascial pain syndrome causing pain when I would walk and sit for longer periods of time.  I recovered from the upper body injuries by the end of February. Shortly thereafter as I intended to resume my normal exercise, I tore a muscle in my other shoulder. I returned to brief physical therapy for a couple weeks and began massage therapy 2 times/week for a month. By the end of March, I felt myself returning to normalcy. So, I resumed the slow, steady, and light exercise and by June I needed to start taking insulin again. The amount of insulin to carbohydrate ratio changed 4 times obviously leading to more lows, but with the experiences from the year, I understood how to work with it. Due to the Diabetes, injuries take longer to heal and it was not until August when I started to feel relief from all the injuries.

I then learned in September 2012 that the odd stomach pains that began during the summer of 2012 turned into frequent trips to the GI unit and they couldn’t find anything. So, I went with Eastern Medicine and they discovered a Candida overgrowth that leads to chronic fatigue, bloating, and cramps. So, the abdomen pain was lurking for months as was the excessive tiredness, because I had been living with a yeast infection since October 2011. The yeast overgrowth was better explained by taking too much antibiotics that were prescribed for the pain and various illnesses caused by my frequent appearances at the hospital. I then had to go on a detox diet to clean out the excessive yeast. So I was drinking nothing but these powdered shakes for 4 weeks to repair my stomach lining. The yeast had infected my body so much and certain foods I was eating made it worse leading to my organs (i.e., nervous system) shutting down in Sept/Oct 2012. I had lost 15 pounds in 2 weeks and apparently my small intestine was damaged, my stomach lining was torn, and my gastrointestinal tract basically stopped functioning. Through it all I stopped needing insulin and had to remove gluten and dairy from my diet in order to function.I started to see an Osteopath in November 2012 and he had told me after assessing my body that my organs were in a sort of earthquake from the car accident leading to damage on two spots of my spine and the reverse side– my bruised esophagus, and damaged small intestine, pancreas, and lower ab region.

By the beginning of December 2012, my blood sugars were finally balanced needing a maximum of 10 units of long lasting insulin (5 at night and 5 during the day), my injuries were healed, and my exercise was finally optimal.  I had flown to New Jersey to visit my sister, came home with the flu, and once I recovered, it was January 2013 when I felt myself, my body, and my world were truly healing. Finally, after 20 months, I can honestly say, it’s been quite the ride (and continues to be). Regardless of the routes I took to heal, it was more about what was best for me as I felt both Eastern and Western medicine contributed to my health improving. After seeing 8 different specialists for 12 different physical injuries, strep throat/flu four times, and the Diabetes diagnosis . . .  I am moving forward, because I refuse to give up.

jg1.jpgI love each one of my friends and family members, who have offered their support (especially those select few who have truly articulated themselves so beautifully). I apologize for the people in my life who I may have neglected or sent mixed messages to as I try to recover and I am taking each hour at a time. I am sad by some of the connections I have lost because of my inability to truly communicate my experience as it was happening. I have understood why certain friends and people in my life may have been offended by my lack of consistent communication (both verbal and nonverbal) and unfortunately I need to be focused on my health. Finally, I am beyond appreciative of the support I have received from my students as they have sent many emails sharing their experiences and thanking me for being so open about my reality with them during the semester. I have learned that we all have challenges in life and how we respond to these challenges is what will make all the difference. I openly accept my new reality until my different normal is settled and defined. I acknowledge that it could be a lot worse and it still sucks… let’s be serious, it sucks AND I will be ok. I still hold true to this quote:

“Attitude is more important than facts. It is more important than the past, than education, than money, than circumstances, than failures, than success, than what other people think, say or do. It is more important than appearance, giftedness, or skill. It will make or break a business…a home…a friendship…an organization. The remarkable thing is, you have a choice everyday of what your attitude will be. We cannot change our past…we cannot change the action of others. We cannot change the inevitable. The only thing we can change is our attitude. Life is 10% of what happens to us and 90% of how we react to it.” –Charles R. Swindoll

As I was fortunate to share with my students and have talked about this many times over wondering why bad things happen to good people and I am beginning to learn why. I think part of it is because most people won’t listen to bad people yet they often have their ear to the floor when good people speak. I seem to have led a healthy lifestyle. I have devoted my energy and efforts to helping people make healthy choices for themselves and hoping to inspire them to maximize their moments…. only to end up with some chronic illness. It reminds me of 3 things:

jg2.jpg

1. Throughout life I chose to take risks and create adventures, travel and learn about this world, and truly live life to the fullest throughout my time just in case something came along that limited my activity… and here it is. I am only hopeful people are able to realize how lucky they are if they do have their health. It is very easy to take advantage of life before a physician tells them they need to make drastic changes. Why wait?

2. It also gives me a moment to reflect on who the important people are in my life why and how fortunate I am to have them help color my world.

3. I am confident that I will return to normalcy and this little bird will fly again regardless of how long it takes for me to “learn how to fly when I ain’t got wings.” I am inspired by the courage, resistance, and perseverance of so many who have been diagnosed with any form of chronic illness. I thank those in my life for their patience and understanding as I WILL reconnect with my mind, body, heart, and soul… one moment at a time.

I am thankful for the nurses, doctors, family, and friends affiliated with the medical field who have helped add insight and provide suggestions. I continue to realize, even though at times I was running into the wind, fighting the battle with cardboard while my feet were stuck in concrete, and wearing kryptonite around my neck, I am still the axis to my world.  I am the one who controls the speed and direction to which it turns and how each moment is defined.

Good things . . . come from the choices we make in life . . .

Jay M. Greenfeld, Ph.D.

—

Songs to accompany Jay’s reflection: A Moment Changes Everything – David Gray, Stand – Rascal Flatts, Little Bird – Kim Sozzi, Learning to Fly – Tom Petty & The Heartbreakers

—–

Thanks so much for sharing, Jay!  Love the music picks and the football picture!

I always feel hugely blessed being able to share stories of people I’ve met in “real life”, and I really appreciate Jay taking the time to share and be so open in class!  As I’ve said before . . . you just never know what a person is going through at a given time, and how well they can keep on rolling with life, and how resilient we can be . . . even when it feels like everything is up in the air, as is the reality with any invisible illness.  Had we not had the discussion that we did in class, I never would have known what was going on behind the scenes for Jay, and how valuable the connection can be from simply sharing these stories.

In addition to teaching university courses on health, exercise and wellbeing (and the whole list of things involved within those topics), Jay has a PhD in Counseling Psychology from the University of Iowa and is a practicing therapist.  He has special interest in exercise psychology, stress management and fitting exercise into the craziness of life, and how this affects people of all ages, primarily adolescents and university/college students. Jay is the author of My Choice, My Life: Realizing your ability to create balance in life (free shipping if you order here!), which is a fabulous resource and I totally recommend it!

Additionally, Jay seems to have an endless store of quotes in his brain, along with an amazing and seemingly relentless energy and passion for all he’s doing . . . and colouring outside the lines! [Stay tuned for more on the Good Things, also!]

advocacy / asthma / being a student / health + fitness / health advocacy / kinesiology / life

going and growing.

• by kerri

I have about a million and one thoughts flowing around in my brain, so bear with me!

—

What I lack in size, I hope I make up for in passion.

Maybe that kid was right–maybe I’m “too tiny to be twenty”. Sometimes I don’t feel twenty–I convince the kids of it daily, but sometimes I have a hard time convincing myself that I could possibly have a quarter of my life behind me already. Sometimes I think I should have more figured out. And sometimes I just feel small, whether that’s in a good way or a not so good way.

I just hope that I’m already making an impact for somebody out there that helps them grow.

—

I taught a grade eleven biology class about asthma today. It went well, but as always I forgot to say a few things I intended to. I’ve done this presentation several times and I tend to change it up at least a little every time based on what I’m feeling in regard to asthma and life. Today, to increase tangibility for NON-asthmatics I had a good section on exercise management beyond asthma and exercise. However, sometimes high schoolers are like talking to brick walls–I don’t blame em, I was (and am) totally not a speaking in class person. Overall, I hope the three students with asthma are maybe thinking a little differently about health management and asthma, and the 25 others are a little more aware of what people with asthma deal with. That said, it was their last day of classes before winter break, so some sluggishness was expected! As always, I’m hoping to keep improving this lecture and my OWN knowledge of asthma, physical activity and how it affects the adolescents I’m speaking to.

—

Speaking of holidays . . . Whoa, nutrition out the window. I have not been doing great in that regard since exams started up, but I have totally fallen off the track! Because at first it becomes “I’ll get back on track after exams” and turns to “Well, its the holidays! I can get back on after!”

Wrong mindset, brain. I had declared on Sunday after not only McDonalds but also Pancake House that I would reclaim some ground on nutrition over the week. That turned into pizza yesterday with Evan while Christmas shopping and pizza today with Dean; tacked on to all the chocolatey goodness that has been served up at work by my coworkers and our families AND the lovely chocolate “hedgehogs” that I received as a gift after teaching grade eleven biology this morning AND the bits of lovely deliciousness my mom keeps baking.
It also morphed into basically no exercise since Sunday. Granted, Sunday included both hockey AND the gym, freaking fabulous; and I suppose that hitting up three malls yesterday in five hours may count for a little . . . but I don’t think so!

To once again quote Jay in his seemingly infinite and entertaining wisdom, “Why are the holidays any different? Because the table’s longer and there are more people at it?”. Yeah, true story.

Not to mention that this has been going on since Sunday. And you know when “the holidays” start? Saturday. At the earliest. That is a week of pre-holiday slackery. Even if the holidays should be no different, which I fully agree with, starting the nutritional/fitness downslide when I was working at getting back on track is no bueno.

Tomorrow: I own you for fueling better. That is my choice, regardless of what deliciousness people give me.
Saturday, I own you for a pre-Christmas dinner workout.
Sunday is fair game for whatever happens and not to think too hard about it.
Monday, boxing day shopping is a sporting event; resume regular programming, and rock this.

I got this.

—

Returning to old schools makes me very aware of the impending future. Today, I headed over to my old high school after work (right next door), an hour before I needed to be there to speak. I dropped my stuff off in the very dark room and made my way through the halls looking for familiar faces and to repeatedly answer the same questions for teachers, people who have played huge roles in helping me to learn and grow into who I am . . . “What are you doing now?” and “What are you planning to do?”

Two and a half years ago I was sitting in those desks. University seemed so far off, the career part of the future even farther. Two and a half years ago I thought I knew who I was; in reality I was as confused as ever. Two and a half years ago I was one of those students contemplating the big world outside those walls.

It makes me see what I’ve gained. But it also makes me wonder what I will have gained in two and a half years from now. I left high school and thought I had a plan. Then my plan changed. My plan still changes minute to minute; other than “probably still in school” I have no idea where I’ll be in two and a half years from now . . . Less idea than I thought I had two and a half years ago.

That scariness is part of the journey. I’d be lying if I said I didn’t thrive on it; I’d be lying if I said it wasn’t scary. But every single day I get closer to that answer. Every single day I know more. Every single day, things happen in a way that affect how I see the world and how I make choices. Every single day, I change as the world changes.

Every single day brings me closer to that answer.

And I wouldn’t trade this crazy journey for anything.

There are even more GOOD THINGS to come.

asthma / health + fitness / kinesiology / work

fantastic friday

• by kerri

This is the best I’ve felt in weeks.

This morning, I woke up and grabbed my inhaler has a completely different meaning.  I woke up, realized how fantastic I was feeling, and reached up to grab my Ventolin to pre-medicate for my first workout in over two weeks, instead of reaching for my inhaler to take the edge off gunky morning lungs.  I kept it short and light, covering 5.66 km in 25 minutes–the last thing I want to do is start going too hard too fast and end up back where I was two weeks ago and get sidelined again (I’m doing a vlog series right now called Working up to Working Out, chronicling my journey back to kicking ass, so feel free to check that out).  And I feel even better afterwards.

Following that I checked the MyBlackboard thing to see if our research papers for Issues in Sport had been graded yet (surprise surprise, nope. They were due November 18th. This would not bug me so much if I had grades for more than one of four reflections for the class also), and the icon under Promotion and Adherence caught my eye.  Course wrap-up message and final exam grades.  Bring on the seconds worth of anticipation when you can’t get the page to load fast enough, right?

The final exam was yesterday and our (unofficial) exam marks are posted (this has me wondering if Jay slept at all or just motored through them), and scored 84% . . . and if all stays as is, will have officially earned my first A- in university!  Needless to say, I am stoked, and that combined with how I left my Physical Activity and Aging exam feeling so positive on Wednesday night . . . well, it’s awesome.

And with that, and being a ball of energy, I am off to work — today is “Santa Day”, so it will be full of pizza and presents and staying at work until 8:30!

But also full of feeling positive, so hooray!

asthma / health + fitness

“doctor, doctor, diagnose the shit outta me . . .”

• by kerri

*I wrote the bulk of this on Thursday, hence why it says “today” instead of “yesterday”. No, I’m not going to edit it. Have to write in the moment, yes?*

So it pisses me off a bit that the last two times I’ve had scheduled doctor’s appointments [aka supposedly healthy visits] I’ve been a) flaring or b) sick.  My last appointment I had some sort of weird exercise-induced flare going on that just wouldn’t give in; and today I have the cold that’s gunking up my lungs and keeping me knocked in the yellow zone.  The cold is what is likely responsible for the whole burnout issue the other day–being sleep deprived, not breathing well, and awake by yourself at 3 AM can do crazy shit to your emotions.  Did my blog rant thing, bounced the thoughts off Natasha, and I’m back to my usual badassmatic self.

Minus the whole exercise component.

Because the resolution of today’s doctor’s appointment?  NO exercise until I’m back to baseline, stay out of the cold as much as possible, and start prednisone if I backslide or feel like I’m not getting better, and then for good measure she totally chased all that with some form of “listen to your body” lecture.  That’s a new one.  So suddenly she’s done some form of 180 on not only giving me fluffy lectures but also trusting me with the decision to start prednisone?  Who are you and what did you do to my doctor?  My history with her on the subject of prednisone was before that I needed to physically go in to see her before starting it so that she could listen to me not wheeze and tell me to start anyway, which I would just procrastinate until I thought I was getting better [because prednisone sucks for everything else except making you breathe better, and by the point you actually want to go on it just to breathe again you don’t care about the insomnia, the hunger/nausea combo, the hyperness, and whatever personal side effects you get from the evil candy [I’m lucky that other than the hyperness thing, I don’t get the ridiculous mood swings].  But nope, instead of a lecture about the all the ridiculous things pred can do to your body, I got off with the list of “No exercise, stay out of the cold, start pred if you need to, listen to your body” lecture. WHAT?

I think this woman is starting to get me.

Okay, for real, the whole paying attention to your body thing isn’t actually fluffy at all, and I totally use it with people when we’re discussing the whole exercise thing.  Except you know, stuff like Oprah made it fluffy.  Anyway, so that front, I’m usually okay on–totally get that whole bit in lecture at least once a term, so being in kinesiology is good for that.  The whole bit gets a whole lot more important when you’re mixing chronic disease, like asthma, in there, and are focusing on maintaining some form of fitness routine.  [RELATED: On the whole note of paying attention to your body, unlike in May ’10 when I brewed a lung infection for over a week before going in, COMPLETE with fever that I had no idea I had.  HELLO, it was May. I thought it was just getting hotter out, I had no idea that it was actually just my body that was screwed up.  So yes, maybe that lecture was justified as she may have recollected the whole issue of me not knowing I had a fever. Way to be out of touch with your own body much? Sheesh.]

So now it is legit today, so now you can switch your brain to think of today as Friday.

Today, I didn’t make good on the whole no exercise/no cold air thing.  Like 24 hours out of the whole deal I effed it up. Yeah for badassery?  I met my friend Kelly for coffee. We always meet at Starbucks . . . so I went. Turns out we were meeting at the nearby Tim’s.  So I had to haul down the street, which is usually no biggie.  So maybe my doctor is right on that.  Because I entered the mall sounding like I had some sort of plague, and people kept looking at me when I coughed as I walked through the mall to meet Kelly while simultaneously digging through my pockets for my inhaler.  So yeah, managed to screw a variety of things up, but at least I got a grande non-fat no whip peppermint mocha out of the deal, right? [Despite the whole non-fat no whip part I should probably give those up until I can work out again [as they are totally 280 calories and 59 grams of carbs. But only 3g of fat.  Compare that with a REGULAR grande peppermint mocha at 400 calories, 15 grams of fat, 60 grams of carbs and 12 grams of protein, you’re at least saving yourself 12 grams of fat (and 120 calories). Hooray!]

I don’t know where I’m going with this anymore, since I just went on a Starbucks nutrition tangent and all.

That’s what happens when a blog post spans over two days and also I need to sleep. So instead of trying to be coherent, I’ll close with one of my favourite WheezyWaiter videos that happens to be on the subject of doctors, and write about the second half of the appointment tomorrow.

advocacy / dare you to move / guest posts / health + fitness

living vertical: steve’s story

• by Awesome Guest Blogger

In 2012, Steve Richert and his wife Stefanie will embark on the adventure of a lifetime–three hundred and sixty five days of climbing with a goal of changing people’s perceptions of physical activity and being active with diabetes.  Diagnosed with type one when he was sixteen, I’m blessed to have Steve here today sharing his story of owning his diabetes through changing his perceptions, what he’s doing through climbing to educate and advocate for physical activity as an integral part of diabetes management, and what he’s going to be up to in 2012.

—–

When I woke up in a hospital bed 13 years ago and was told “You have Type 1 diabetes” I had no way of knowing how much it would change my life. Today, this condition I live with has shaped who I am and has caused me to reach greater heights (literally!) than I may have otherwise.

My first reaction to my diagnosis was that I determined to find a way to beat it. I couldn’t stand the idea of being dependent on medicine or hospitals. I wanted to be free—and the fact that the doctors all told me that there was no cure, made me decide that I had to simply find a loophole.

To start with, I decided that I would prioritize my health above everything else. As a 16 year old, that meant explaining my strict diet to other kids in the lunch room and checking my blood sugar before (and during) soccer games, always carrying food in case my sugar dropped low and not getting to treat eating as a recreational activity. Diabetes forces you to redefine your relationship with food—or lose your eyesight, your limbs, your kidneys and circulatory system—so there is a lot at stake!

Fitness became a big part of my life because the insulin injections that I took would work more effectively when I was active—playing sports and working out basically became medicine for me—both to help my body use the insulin I took and also as a means to combat stress. As I grew older and made it through college, the mental aspect of diabetes began to impact me—or at least to the point that I suddenly became aware of it.

Having a chronic illness carries with it some sort of routine that you must adhere to in order to stay well—and while this monotony can allow you a measure of success in dealing with the disease, it causes you to become tired mentally. Depressed. Bored. Hopeless.

I was staying healthy by just eating well and going to the gym, but I knew that I needed to escape the routine if I was going to progress—and that is when I found climbing. I had tried climbing when I was in high school as part of a Phys Ed unit. It initially appealed to me but I didn’t really know how to get into it. So I let it be. Once I revisited the sport after college, it became both a physical activity and mental stimulant. Climbing became my means to explore the world outside my comfort zone: my gateway to the unknown.

I followed the path that my passion led me down and I began learning how to teach others to climb and in 2009 I began working as a climbing guide. I get great enjoyment from being able to teach people to climb and showing them that they CAN do it. Taking something that seems impossible and making it possible is the magic of climbing. Some of the richest experiences I have had climbing have come from situations that held an unknown—that became a success only after the fact.

When I tell people what I do to stay healthy, they frequently smile and shake their head: “That’s fine for you, but I can’t do enough pull ups” or “I am terrified of heights—I could never do that”. Those are the people that I MOST want to take climbing, because turning that can’t into just did is a life-changing experience—and I want others to experience the power of the natural world like I have—through challenging themselves!

Recently, this exact initiative has been my focus. I decided that since I can’t bring people to the mountains, I can bring the mountains to the people—through film. Starting on January 1st 2012, my wife Stefanie and I will begin 365 days of climbing across North America, which we will be filming to make an in depth adventure documentary that will bring you into the high and wild places that we will be climbing! We are selling all of our possessions that won’t fit into our little red hatchback and setting off on a grand adventure. We want everyone to follow along. We will be blogging at www.livingvertical.org where you can keep up with our adventures and support our film if you would like to be part of what we are doing.

My goal at 16 was to overcome diabetes. 13 years later, I still have to take insulin injections 5-10 times daily. I still have to stick my finger 4-6 times a day. There still is no cure. But diabetes has forced me to problem solve, forced me to raise the bar and step up and out of my comfort zone and given me life experience that a pharmaceutical cure would have stolen from me! I consider myself blessed to have the opportunity to take on this challenge and I look forward to sharing my successes, struggles, failures and mountain-top experiences with you all during 2012!

—

Steve is the founder of Living Vertical as well as a climbing instructor.  In 2012, he and his wife Stefanie will be picking up their lives and heading out on the road to spend the year climbing and spreading the message that yes, you CAN do this!  LivingVertical is a non-profit organization that uses climbing and organic nutrition to empower and improve the lives of people living with type 1 diabetes.  To help Steve and Stefaine reach their goal, please consider donating to their project here (all kinds of cool incentives, too!), or contributing through donations of supplies they may need along the way, specifically climbing equipment, snacks and OneTouch blood glucose test strips–gotta keep our friends safe and healthy on the road!

As Steve’s mantra says . . . “Why wait for the ‘cure’?”  What are YOU doing to stay active and healthy with chronic disease and own it — not tomorrow, not next week, but today? Want to share your story?  E-mail me and join the journey.