world asthma day 2016: hello, asthma.net

Today […yesterday, technically] is World Asthma Day. Much the same as at 12:05 AM, I have no riveting thoughts on this. I took my inhalers, I went to bed. I woke up, I took my inhalers, I went out. I took my inhalers before coaching, I came home, I went to the pharmacy and picked up more inhalers, and I’ll take medicine again before I go to bed.

And I wore this shirt that I wear one day a year.

World Asthma Day? It’s gotten boring. Just like this disease. I feel like the organizers aren’t putting the effort in, even. The theme has been “You can control your asthma” for as long as I can remember. Guess what? That hasn’t changed much either.

Maybe people with asthma would think differently about choosing to manage their disease, if they were given something to think about.  We need some fresh air, y’all. (Bad puns…)

Fortunately, I’ve got a fresh announcement to make up for that.

Asthma.net launched TODAY. 

Way back, I signed a blogging contract with Health-Union, LLC, which oversees Asthma.net. They took their time getting their ducks in a row—which is, as a contractor, super nice because since starting to submit work to them, everything has been SUPER ON THE BALL. I honestly do not have enough good things to say about working with them!

Asthma.net stands for the same things that I do: writing for Health-Union, I retain all credit for my work, and I get to choose my post topics—but, I have people to fall back on if I’m stuck for topics. And yes, of course, they pay me. Not only that, though, but they treat patients like experts—who knows our world better than we do, right? Health-Union has been at this awhile—and it’s clear they’ve done the work to get their relationships right.

Please, check it out. I highly recommend checking out other contributors as well, but here’s where you can find my posts.

…By the way, I freaked right out when I saw one of my posts as a featured post earlier. Whaaaaat.

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So, as I try (again) to write my patient story for our National Asthma Patient Alliance executive meeting in Toronto this weekend (again. I can only talk about myself so much… Said the blogger…), I’m reminded of the importance of our stories.

And I’m grateful that more and more organizations are seeing the importance of sharing patient stories in empowering patients, too.

Disclosure: I am provided per-piece compensation by Health-Union, LLC, for pieces I publish to Asthma.Net. Health-Union allows me full choice over what I contribute, as long as it falls within their guidelines (which are basically like, don’t be mean to people). I was not asked to write this post, nor was I ever asked to share Asthma.Net on social media.
I mean… If they googled me for all of 5 seconds they’d know I’d share anyways. But, they never asked me to. 

12 of 12: april 2016

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1:12 am | kitchen. Felt like making something around 11:45. Still making something.

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1:19 am | kitchen. And this is where I stop for the night. Pleasantly surprised with how the hair is coming. (I’m responding to the “draw a song” art journal prompt I saw online, using Feels Like Forever by Lacey Sturm.)

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2:00 am | bedroom. Tweet – “1:58 am seems like a good time to buy the @Smiling_Mind book right? Yup. Now to use the app and go to sleep.”
I did not end up using the app before I went to sleep, but I did almost also buy the November Project book… I restrained myself.

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10:17 am | Perkins. Sam and I went to Perkins to plan practice, because my Starbucks card reload failed during the upgrade to #Crybucks Rewards. Starbucks is refunding it, but why would I go to Starbucks with it not resolved? So, Perkins. And these delightful crepe things filled with strawberries and cream cheese.

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12:23 pm | Kitchen. I should really just start saying office instead of kitchen. I started the process of checking off many things from my to-do list with “file taxes”. As you may recall, they’ve been done since March 12… Submitted.

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3:39 pm | Kitchen. After filing my taxes and scheduling my tooth extraction (being a grown up is AWESOME. Like I wrote the other day, I’ve got a cavity in a wisdom tooth so it gets to get pulled out. Which is better than getting it filled, really.) I got a 20 minute dance workout on. Except I did it wrong and ended with a peak heart rate… Poor music choices (actually due to the song linked above)…
Anyways, yeah, I then did another grown up activity and did some work, which involved writing a blog post about why warming up and cooling down is important, and how despite having a degree in kinesiology I’m not smart sometimes.

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6:54 pm | Special O. Sometimes, we play games like Capture the Chicken that the parents are more intense about it than the kids (it does get the athletes stoked though..!). Yes, this guy is also my sport medicine doctor. 😉

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 9:31 pm | kitchen. 4 things checked off the month’s to-do list today.

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9:49 pm | kitchen. This is my buddy Guide Dog Murray, aka Steve’s guide dog. You should vote for him in the Guide Dogs for the Blind photo contest. He’s raised $25 so far, because he’s cute (and because humans are nice).

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11:00 pm | kitchen. I had a bath, and then put on clean socks… except I have no idea why there is red on this clean sock or what it is… Obviously I was like whatever and did not like, put other socks on or anything. Maybe it’s from that string anklet I’ve got on, but I’ve had that on for, like, months.

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11:34 pm | kitchen. Classic. Cookies and milk. (There was another cookie but you don’t expect me to, like, save them both to take a picture of, right?)

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12:38 am | kitchen. Technically no longer the 12th. But still within 24 hours and back to creating stuff. Because it’s like, therapeutic or something.

guest post! | elisheva on “the trials, tribulations and joys of working from home”

My friend Elisheva has been a long-time guest blogger on my blog(s), because she is awesome. After I announced my new employers (disclosure update, yo), she offered to provide some tips on working from home (which she has much experience in, although has gone back to the office-outside-her-home world [and even got to go on a work field trip the other day]).  Thanks, Elisheva!! (And thanks for the excitement!)

———-

Congratulations to my buddy Kerri on not one, but TWO new jobs!  Yay yay yay!  Hurray!  This is exciting cuz, (a) money, and (b) connections and resume building and (c) getting paid to do things you are passionate about!  (I’m only a little bit jealous…)

 
And now to get on with what this post is actually supposed to be about.
 
I’d welcome you to the world of working from home… but I’m not there anymore.  I do have a bunch of experience in that though.  Unlike me, you will not be your own boss (freelancing sucks!), but many aspects will be the same.  Meaning the not going to the office every day part.  The working from home part.  Yeah, that.
 
One of the biggies when working from home is finding balance.  There are awesome things and there are sucky things.  Sometimes things can be awesome and sucky at the same time.  Observe.
 
1) You can work in your PJs or even naked if you want to. (Woohoo!)  But you can also go for days at a time without ever getting dressed or leaving your house.  (Boo.)
 
2) You have flexible hours and can schedule meetings/appointments/hangouts during the day. (Nice!)  But you can also find yourself working your tushy off evenings and nights to meet deadlines when you’d rather be doing other things. (Damn.)
 
3) You can burp and fart and pick your nose and never brush your hair and no one will know or care.  (Whoa, really?)  But you might lose some or all of your social skills by the time you leave your cave and interact with humanity again. (Bummer.)  Back in my translating days, I sometimes went to translator meetings and was shocked to see how socially awkward some of the long-time translators were.
 
4) You don’t have your boss watching you and breathing down your neck all day. (Freedom!!)  But that means that you are responsible for budgeting your time and making sure things get done. (Uhhh… kay…)
 
5) If you have a pet or a child or a never-ending pile of laundry that needs your attention throughout the day, you can be there. (Convenient 🙂 )  But those things can actually distract you and keep you from getting your work done. (I knew there was a catch.)
 
The following things are also added to the list for freelancers:
 
6) You are your own boss and call all the shots. (Power!) But you also have to take care of all of the bureocracy, taxes, advertising, billing and contact with clients by yourself.  You are the company.  (Sucks.)
 
7) You will have months where you have lots of work and make a lot of money. (Score!)  But you will also have months where you are almost desperate for work. (Ugh.)
 
So basically, if you’re still reading, you should have gathered that depending on how you swing it, working from home could either rock or stink, depending on how you swing it.  You’ll likely experience both.
 
And now, finally, here are some tried and true tips from your buddy Elishevathe Former Translator.  These might not work for everyone, but they worked for me.
 
1) Structure is important.  Even though I could have easily slept in, I woke up at 7 every day and started working by 8.  I tried my best to work standard work hours so that I would be busy at the same time as normal people and free at the same time as normal people.
 
2) Give yourself work space.  Get out of your bedroom if you can.  Working in your room will make you sleepy during the day since you associate it with sleeping and you might have a hard time sleeping at night because you associate it with work.  I worked best while sitting on a chair at the table in the living room.  It kept me from getting distracted or drifting off and it made me feel more professional.  Even better is finding a workspace outside of your home like a library, cafe, or workhub.  Getting dressed and leaving the house will also help you feel more professional.
 
3) Give yourself reasons to be social. Going to work provides people with face-to-face social interaction.  When working from home, it’s important to find reasons to get dressed and leave your house.  Go out with friends, go to cultural events, join a class and/or volunteer for a cause you believe in.  It’s important to keep those social skills in good working order, both for your mental health and in preparation for the day when you no longer work from home.
 
4) Learn about your legal rights.  Just because you work from home and the people you work with never see you doesn’t mean that they can take advantage of you.  Make sure you are getting paid on time and that you are getting treated fairly.  You also are working for one organization in another province and one organization in the US.  I have no idea what the legal or tax ramifications of this would be.  It would be wise to find this out.
 
5) Stand up for yourself at home.  Because I worked for myself and made my own schedule, people in my life tended to occasionally forget that I actually had a full time job and would ask me for favors such as babysitting or picking up things for them in the middle of the day.  Sometimes I would oblige if I could swing it, and sometimes I had to remind them that I actually did have a job and while I could work any time, I really prefered to work normal people hours.  So while they worked at an office and I worked at home, I was working just like they were and deserved not to be bothered.
 
Anyway, that’s all I can think of for now.  Looking forward to hearing great things about these new opportunities, Kerri!  All the best and good luck 🙂