I always set alarms. Even if I go to bed with no need to get up and an alarm set for 11 am, I always set alarms so SleepCycle does its magic. Last night, I fell asleep amidst the beginning #MedXHangover, without setting an alarm. Ten hours later (I woke up a few times, briefly), Fitbit informed me I went to bed at 11:13 pm, and slept for exactly ten hours. That’s what happens when on the last night of Stanford MedicineX, fellow Canadian, Bill Swan, has a brilliant idea and we stayed awake all night mind mapping while waiting for our 3:55 AM shuttle to the airport, along with Steve—the reason I was at MedicineX in the first place, to be his guide—and Guide Dog Murray (who did not stay up all night because that dog does not even stay up all day.)
I got out of bed, to finish watching my friend Ryan’s documentary about Chronic Fatigue Syndrome (ME/CFS), Forgotten Plague, with my MedX mug beside me, in use for the first time.
Ryan and I met in 2014 at MedX, and I had the privilege of watching an unfinished cut of the film back then—it’s amazing, and even more so to see the transformation within the documentary. Go watch it.
Ryan and I on Sunday night by the pool.
I then tried to put my jeans on inside out and was almost successful, and then emptied my pockets of the dollar bills that accumulated there (like pennies, this Canadian can’t stand dollar bills).
I’ve failed in the past at adequately summarizing MedicineX on my blog: it is too big for the words that I have, as I said in this video. So instead, this time, I will attempt with a bullet point list, in no particular order. I don’t have a good track record over the last 4 years and 2 MedicineX conferences I’ve attended of expanding on the stories much, but maybe this way I can have some hope.
Back in 2014, Rachel and I started up the #MedXEh hashtag for our fellow Canadians to share in the story with us, from the Canadian perspective. This year, I met so many more Canadians in the past, and not just patients. I am looking forward to grabbing coffee with Dr. Greg Schmidt from here in Winnipeg (represent!), and connecting again with Bill and Amos from MemoText next time I am in Toronto, after learning about the technology they are working on for asthma management. Canadian Mental Health advocate Mark Freeman and I will, I am sure, have some good chats in the future. I am happy to have found so many people from this country, this healthcare system, engaging in this discussion.
Thanks to Uber Driver Sean for pulling over to snap this shot of Dia, Bill and I!
It’s so cool when someone you only know on Twitter walks up to you and exclaims your name, and you greet one another with a hug. It’s even better when you can exchange stories with patients you’ve just met and know nothing about—your quick, 30-second elevator pitch of yourself, if you will. MedicineX is amazing for bringing patients into the conversation, but also for letting us have those conversations amongst ourselves with the ample networking time. Sometimes, you walk into a room for a presentation, and the speaker greets you by name because they’ve been seeing your tweets flying by on the hashtag, or IDEO p. Patients are not just patients, and students are not just students, to most of the attendees—whether healthcare administrators, doctors—we are there to share our expertise, too. If you are willing to share your story, and be bold, your story is valued.
Healthcare Engineer Yang Fang and I, on a non-MedX meetup this weekend. He’s been working on a predictive asthma tracking app/site for several years now, keeping patients—like me—at the centre of his work!
Thanks to Random Guy Who Borrowed Bill’s Phone Cord at the Sheraton Lounge for his photography work!
If you don’t know someone at MedX and find yourself sitting beside them, it’s not uncommon to hear “Hey, what’s your story?” I found that this year more than in 2014, I spoke with a lot more different people than in the past—like caregivers, doctors, designers—and not just patients.
Story is important at MedicineX. And then story, becomes solution: how might we is one theme that is commonly used when someone illustrates a problem they have encountered, and then the community dreams big with the realization this is not right, let’s fix it. (See also: stories, below.)
As Nick Dawson (one of my favourite ever presenters, and people, who told several of us “Come to DC and work in the design lab!”), lead the closing exercise, he said “How might we make research more delightful?” This is a common thread: how might we take something that’s okay, or good, and make it into something ridiculously great? No holds are barred, and this is a theme that IDEO has made an Integral part of MedicineX. How might we.
Nick, for some reason behind the couches.
Steve participated in the IDEO Design Challenge (video to come), as did Dia, where Bill participated in the Entrepreneurship track—all based on how better solutions can, and should, be created to solve problems caused by poor or unimaginative design.
Technology is a huge player in MedicineX, but as both seen in the IDEO design challenge and throughout the conference, sometimes it’s not about tech at all, it’s about innovation, and it’s about “co-creation” with everybody involved (as much of a buzzword as that may have been). People need to play with design.
Every story someone at MedicineX brings to the table is important—even if you are not a presenter, you will at some point be asked “What’s your story?” (unless you are like, chilling in the wellness room being quiet the whole time). While I used to feel like it was mostly patients being asked their stories, I often heard patients turning to a doctor or a designer, or another attendee to ask “So, what’s your story?”
Everybody has a reason for doing what they do—from Yoko of Sen Sound sharing and gathering stories about the last sounds attendees wished to hear, to the folks at IDEO, to every app developer or hospital administrator or insurance provider who realized “This isn’t right, let’s do better,” and went with their heart and gut feeling, even if it wasn’t the status quo. Everybody has a story—and the MedX community embraces them.
This is what MedX 2016 came down to for me: Canadians, connections, conversation, design and stories. It’s left me exhausted (that might be the all-nighter) and energized to do more, create more, be better, be more bold and transparent, and explore more areas I haven’t even begun to consider.
There are more stories left to be told—if I’m not too wrapped up immersing myself in making things happen :).