Today is the last day of Invisible Illness week!  I had the pleasure of being able to interview Kerri from Six Until Me (see also: creator of the #KerriPower hashtag we use when doing awesome things together!) about life with diabetes and being an amazing advocate for people with diabetes.  Kerri is also the reason that I have so many awesome friends in the Diabetes Online Community [yay #KerriPower!]

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Me: Hi Kerri! I’m so stoked to have you here sharing your perspective! YAY FOR KERRI POWER! Tell us a bit about yourself!

Kerri: Hi back to you, Kerri!  (Nice name you have there.)  I’m really honored to be hanging out on your blog today.  I usually blog over at my diabetes blog, www.SixUntilMe.com, where I write about life with type 1 diabetes, my goofy little daughter, my husband, and those three cats that somehow ended up living in my house.  It’s a potluck of chaos.

You’re a pretty elite and FAMOUS diabetes blogger :] — how did you get started in the blogging world?
Awww, you are way too nice!  I started blogging back in May of 2005 at the prompting of my then-boyfriend/now-husband.  I had been talking to him about Clara Barton Camp (a summer camp just for girls with type 1 diabetes) and explaining how I missed that feeling of knowing other people who had diabetes, too. He told me about this mysterious “blaaaahging” thing, and I decided to give it a go.  I posted my first post on May 4, 2005 and I found other diabetes bloggers almost immediately.  And then other people with diabetes found me.  From there, it got kind of crazy, because now there are hundreds of people who are blogging about their diabetes or the diabetes of someone they love, and suddenly I’m not at a loss for people who also don’t make their own insulin.  It’s nice, having a community that really gets it.  I’m honored to be part of this.

What kind of impact has the Diabetes Online Community [DOC] had on your own perspective on living with and managing your diabetes?
The DOC has confirmed for me that I’m not alone.  Managing diabetes is one thing, but feeling like you’re the only person on the planet who has to do it is really isolating and depressing.  Finding this community has made me feel more confident that there is a good life to be had, even after a diabetes diagnosis.  There are so many people with diabetes who are doing incredible things – and incredibly normal things – that I feel inspired and empowered by this community every, single day.

It’s evident that advocacy for people with diabetes is important to you. What’s your favourite advocacy moment story? [I know it could be a tough one!]
Growing up, I didn’t have a lot of mainstream media examples of people with diabetes.  The only one I knew of was Julia Roberts’ character in Steele Magnolias, where she’s a woman with diabetes who decides, against the advice of her medical team, to have a child.  Long story short, her character has a baby and then dies soon-thereafter from diabetes complications.  This was my mental image of a woman with diabetes who wanted to have a baby.  Now, after several years of planning, more hard work than I could imagine, and one very closely-monitored pregnancy, I have a healthy and happy 17 month old daughter. Blogging about my pregnancy is one of my proudest moments because I hoped to be an example of hard work equalling a healthy outcome.

What kind of advocacy projects are you currently involved with?
I write daily on SixUntilMe, and I try to keep it raw and honest because I want to share what life is really like with type 1 diabetes.  I also speak regularly at diabetes and healthcare conferences, and I’m currently hard at work on a big project that will be announced next year … so stay tuned!  🙂

You’ve had diabetes for a long time, but has having diabetes brought you anywhere that you’d never have imagined?
These advocacy opportunities have me speaking about diabetes to the CEOs of companies, and to government officials in Washington.  I’ve traveled the country on a platform of humor and honest advocacy, honored to be speaking at different health-related events.  And in December, I’ll be headed to Dubai, UAE for the World Diabetes Congress, which is the farthest I’ll have ever been from home.  I never imagined that advocating for diabetes would bring me such opportunity.

How do you encourage other PWDs to get involved with the DOC?
I tell people that we’re here, all the time.  Any time of day, you can log onto the computer and find another person with diabetes hanging out on a blog, or on Twitter, or on Facebook.  Diabetes never sleeps, but thankfully, neither do PWDs and their caregivers.  😉  Just add your voice to the chorus; the bigger our community becomes, the more our health benefits.

If you could tell a person without diabetes just ONE thing about living with diabetes, what would it be?
There IS life after diagnosis.  You’ll be okay.
Thanks, Kerri, for sharing your thoughts here today!  [We need to have an epic meet-up full of iced coffee and cupcakes and Kerri Power!]

Kerri Morrone Sparling lives with her husband, Chris, and her ridiculously adorable pink-tutu wearing seventeen-month-old daughter.  Kerri was diagnosed with type one diabetes at the age of six and is an influential member of the diabetes community, both online and off.  Kerri blogs at Six Until Me.

Despite a huge step towards education and awareness in both the media and in the classroom, severe food allergies remain hugely misunderstood and are tangled in too many misconceptions–misconceptions that can have deadly consequences.  As a childcare worker and a friend of many people with severe allergies, it’s something I often find myself thinking about.  But unless you live with it, you don’t know the half of it.

Chad is, according to his Facebook, a ninja, and also my neighbour at the cabin.  Though he doesn’t proclaim his ninja-status in his guest post, only badassery, he shares a story of a recent experience living with severe food allergies.

So I’m The Chad. 37, husband, father, badass and sufferer of a hidden illness. I have a deadly allergy. I really need the guy from the movie trailers to narrate that part. About 10 years ago I suddenly developed an allergy to all water dwelling creatures. Call it seafood, fish, whatever, if it comes from the water, it will likely kill me.

Sadly, one of my most favorite foods is tuna. Not anymore though. I’m not here to bemoan my issue as I have pretty much come to terms with it. What I’d like to talk about is respect for people who have allergies, especially in restaurants.

This weekend my wife, the boy and I went to a local MONGOlian restaurant that shall remain nameless. Now we eat there a fair bit and I’ve always been pretty happy with how they handle it when I tell them I have an allergy. They are quite allergy friendly to all sorts and, as a result, it’s one of our favorite lunches out.

As usual we told the server I had a seafood allergy and off she went to tell the grillers so they could clean a spot for me when I got there. All went well, the tower of food was created and the grill was being scrubbed when my wife heard this terrific exchange:

Server: “That guy has a seafood allergy.”

Manager: “Are you sure it was seafood, cause we don’t have seafood here.”

This was the start of a terrific comedy of errors that lead to one of the staff dumping a bowl onto the grill right beside my “clean zone”. This bowl prominently featured both fish and seafood and all of the oil and flavour sauces ended up guess where. That’s right, in my stir-fry. I calmly called over one of the staff and advised that they would need to throw mine out and I’d go and make a new one. I explained why at which point I watched two of these wonderful gentlemen pick through my stir-fry as though they could find and remove the offending material. I explained again, which was followed by further blank looks, more useless picking through my food, ending with me walking away to make another bowl.

So far, nothing too bad, however my return to the grill was met with sighs and looks of annoyance as if my allergy was in some way inconveniencing them and making there world a sad, sad place. They created a ridiculous safe zone that was nearly half the grill and anytime something bounced out of someone else’s stir-fry, close to mine or not they made a Tony worthy production of stopping everyone and flicking it off the grill. It’s pretty horrible when you feel like you have to apologize for something that is not your fault and that you didn’t ask for. The story ended happily-ish with a free stir-fry for me and an “apology” from the manager type person. Will I go back? Maybe, but probably not to this location. The actions of a couple of people who have likely never been affected by something like an allergy has effectively turned me off from the establishment.

It also made me think about how others with allergies are treated and how much of an issue non-allergy folks make when their kids can’t take a peanut butter sandwich to school or are asked not to wear perfume or cologne to work or are asked to take 5 minutes to make sure someone’s food is safe to eat. It would be great if everyone that’s ever felt put out or annoyed by this would just take a moment and think, “how would I feel if this were my son or daughter or myself affected by this?” “What if one peanut, one shrimp, one sting could kill me?”

In addition to his day job, Chad creates short films and photo slideshows with Wildhorse Jack Productions.  He and his family can be found travelling on major league baseball adventures.  At the cabin, he can often be found on the dock with a book [until those annoying neighbours come over and bother him, anyways!].