The Tour de Good Things was a way i could summate the crazy journey I took to culminate August and begin September—both on an extremely high note. It has been nearly impossible to come down from the high that begun prior to Medicine X 2014 at Stanford University [disclosure], especially since the journey encompassed 7,227 kilometres (or about that). The last Thursday in August, I got into a car with a 60L hiking backpack of necessities and a drawstring backpack of medications, my only “prepared” travel document being my passport, and left home for 12 days. I arrived back into Winnipeg by plane last Monday after a red eye flight via Minneapolis—my initial destination.

There are many posts in here waiting to be written, and a video to come. But as many, many others have summated, the power, the magic, the amazing of Medicine X is in the people: This is a theme that would cover the entirety of the Tour de Good Things.

Minneapolis.

This kid (my cousin, Dean) headed down to University of Minnesota to start becoming an engineer of the probably civil variety, not the train variety [though, train engineers are probably also very civil]. So thanks to him I got a really long ride to the airport.

I also had grilled cheese and an awesome conversation on the parallels of asthma and T1 diabetes with these lovelies, Scott and Heather.

SFO. All over the East Bay. Santa Cruz. Davis.

My awesome aunt, Linda, and my grandma dropped me off at MSP after a 4.5 day drive to the airport […okay, the airport truly is only 8 hours from home. Not that that’s close.] and a four hour flight, I hit ground at SFO and was swept up into my “Cali-bestie” Steve’s truck, where (after picking up pizza), I FINALLY got to meet his long time partner and now husband, Doug (finally. On my third visit to the Bay Area—third time’s the charm, right? Doug is, of course, to a tee of how Steve describes him, and a total sweetheart just like Steve). We headed to Santa Cruz the next day, and San Jose where I finally got to meet his mom, Claire, his sister Sheree, and Sheree’s husband, Dan, who had us over for lunch on Monday.

The next day we headed over to Davis to get Steve’s new bass set up by a cool dude named Harrison.

San Francisco.

Steve drove me out to SF on Wednesday [because he is the best] to ensure I made my connection with my friend Carly (whom I met at MedX in 2012!) at the Twitter building. Carly’s friend Samantha was [at the time] working for Twitter, and had invited Carly for lunch—and opened up the invitation to any of Carly’s friends who wanted to come, too, which was beyond awesome :). (Samantha on the left, Carly—our link!—in the middle :].) Thanks, ladies!

Carly and I made a brief stop in Japantown after lunch and our tour around Twitter with Samantha, and then headed for Palo Alto. Not long after arriving, we had a spontaneous MedX ePatient gathering by the pool—meeting, and reuniting, with a lot of kickass ePatients—friends.

Carly and I (left, of course), [fellow Canadian!] Annette, Liza, Meredith, Dee, Marie (from Ireland!) and Michael (from England!) at the Sheraton. (Thanks to the Sheraton team member who ran out to take this shot for us!)

The next day, the fun really got started when Dr. Larry Chu [the beyond awesome MedX Conference Director!] introduced us to the Selfie Stick [here’s a professional picture (source) of Leslie, Emily, Karen, Rachel [TEAM CANADA!], myself, and Nikki selfie-ing with a selfie-stick on pre-conference workshop day!]

Of course, Ryan had to give it a go once we hit MedX full-stride—he had to make himself short for me so that a) I could adequately put my arm around his shoulders, and b) because he is too tall and was blocking the world medicine :).

No selfie stick for Brett and I, though (…everybody is SO TALL). He yelled “Oh hey, it’s Kerri!” in the corner right by the selfie station, and then we hugged, and I was like “okay we need to selfie so we don’t forget!” :]

We don’t always selfie in front of the selfie wall—sometimes we selfie in front of the gold badge door. Not only was Devon, below, a hit among the crowd at MedX, I was super excited to find another lunger on the scene [I mean, asthmatics DO hide everywhere, but… they hide].

Devon spoke on a panel about “the non-smartphone patient”, and has COPD. And, though he seemed adamantly against it before I showed him everybody tweeting his quotes, I did get him signed up on Twitter!

My super sweet roomie, Karen, and behind us, her poster presentation on the metaphorical dance that is chronic illness. Karen is a sport psychologist from Mexico and is generally amazing, so we never had a shortage of fun things to talk about :).

And on the subject of roommates, my 2012 roomie, Kim, and I—clearly in the club, and not at a medical conference. #ClubMedX

And, Miss Zoe Chu. While puppy, and not people, she lovingly made MedX granola for me and we had selfie times, so she clearly belongs on this list :].

Joe from Eli Lilly’s Team of Good People and Awesomeness (aka Lilly Clinical Open Innovation) and I—we look less like a painting in person. Probably. 🙂

And, Jerry from Eli Lilly, who was in the elevator on Thursday morning before Partnering for Health when a bunch of ePatients yelled my name and hugged me as I got on the elevator. Except we didn’t know we were supposed to know each other yet, and then he sat down beside me at Partnering for Health and identified us as the people from the elevator and said he was wondering if we were Medicine X people. Because I am all class, I was like “Yeah, we were the people yelling and hugging in the elevator—did you feel left out?! Do you need a hug!?”—he accepted this crazy Canadian’s hug, so we are clearly meant to be friends. Also, he’s awesome. And broke into a presentation during Partnering for Health when all the patients were very confused on Twitter.

Alan, Britt, Leslie, myself and Julie (Photo grabbed from Britt via Facebook!)

Sarah—one of the awesome ePatient advisors—with her CANADIAN SCARF, Rachel and I, after the closing ceremony of Medicine X.

And below, Britt (on the ePatient advisory team), Marvin—who is super sweet and I didn’t get to connect with nearly enough! :)—Rachel and I. 

And, my own ePatient advisor and friend from 2012, Chris (he’s laughing about attempting to hug me with the giant hiking backpack on)—just before Joe (below!), Marie and I headed to the airport (where I almost lost my phone and Joe totally provided an amazing Joe-hug to alleviate my stress, and told me how I could get the Delta people to bring it to me to avoid having to go back through security, since I’d left it at the check-in kiosk). 

These people—and ALL the people I met and interacted with at MedX

(I can’t even source those photos anymore :])

—are not the entirety of the story of Medicine X: but they are the part that matters most. As are the people that preceded my arrival for Medicine X to my own part of the journey, and the people who engaged in #MedX via Twitter: WE belong here.

(Photo of photo cred to Joe Riffe)

And here isn’t always a place: often, it’s a state.

And I love each and every one of you, and I hope our stories continue to connect in a way that makes a difference: Remember to not lose sight of where you were—where we were—hold on to that feeling.

We’ll change the world together.

Stanford Medicine X is “a medical conference for everyone”.

Everyone includes a lot of patients—including myself, and people like my friends Kim and Carly [and many others!] who also attended #medx in 2012 and will be back this year.

Cherise, Kim, Chris and I in 2012!

More importantly right now… everyone includes YOU—or, anybody who is chilling at home on their couch, or at their kitchen table, or anywhere there is internet, thanks to the Medicine-X Global Access Program! Through the Global Access Program you can join the main stage fun of Medicine X, check out how technology is evolving and changing healthcare, and how that is becoming more and more accessible to both patients and care providers*. Med-X is taking place from September 5th through 7th [with workshops happening before as well].  And, it’s free! [I know right?! Free is my favourite price, too]  If you’ve never attended a conference virtually before, Carly is a master: she has even written an amazing virtual conference attendance how-to guide to help make the most of your experience.

Remember: Medicine-X… is for everyone. Everyone who participates in Medicine X — whether in person or online — is there for similar reasons: We believe our stories can make a difference; we recognize the potential technology has to improve healthcare—to improve patient outcomes; to change the way we think of–and manage–our own stories that involve chronic disease or another circumstance that has caused us to more deeply invest in healthcare; in changing our own outcomes and interactions within our care. And we all believe that we can be part of a bigger story, where the patient truly becomes the centre of care—not the system.

I guarantee Twitter will be on fire, so if you’re watching from home [or work… Not that I’m encouraging that :].], ensure you jump on that before the conference if you’re unfamiliar. [My soon-to-be-roommate, Karen, even tweeted last year in both Spanish and English—clearly she is magic. She’s also a sport psychologist and also has asthma, so we were totally meant to be roommates and I’m beyond excited to meet her.] And, while I could tell you what I’m excited for on the main stage, we might be here all day: so check out the program here and get stoked yourself!

Curious? Check it out. Register. [Remember, it’s free.]

And if you have questions, ask away below, or on twitter at #medx—we’ll help you out.

 

*Access to technology among providers in the Western world probably varies much on your geography/medical system. Just because it’s available, doesn’t mean that—for example—iPads are popping up in Canadian hospitals. Here in Winnipeg, electronic charting is sometimes either a) a new thing, or b) not even happening yet.  Which is among reasons why having international input and attendance at these conferences is so important: we can’t improve care through technology we don’t have access to—and, beyond financial constraints, knowledge of value in application is the other huge barrier to integrating technology to improve patient care, or improve the lives of all people. Knowing what I know, I shouldn’t have been shocked when my new-ish gynaecologist, Alaa, pulled up my pathology report on his computer at my first appointment. And I should probably stop being so shocked when I find someone I know wearing a Fitbit or using MyFitnessPal. And, for those of you Canadians who are in this boat with me, don’t worry: there are a handful of Canadians in the crowd, and we’ll do our best to get our voices out there, too.

I’ve been blessed with being able to meet a lot of really cool people, connect with a lot more, and be presented with a lot of really amazing opportunities.  At the end of December, I declared 2012 as the year of Good Things, and whether it is actually happening or it is just perspective [which IS still actually happening]. For instance, Ari Shine and Josh Damigo follow me on Twitter, and that is pretty awesome, because they are kickass musicians working super hard at what they do. I only mention this, because it is the pure connecting power of the Internet that has helped me land in a lot of places.

A few months ago, I haphazardly filled out an application to attend the Medicine-X conference at Stanford Medical School in Palo Alto, California, on recommendation of a Twitter follower who had attended Med-X in the past. Haphazardly because, thank you academic writing, I can make myself sound decent without trying too hard. And then, mostly I forgot about it assuming that nothing would come of it.

Last week, I received an e-mail that I had been selected to receive a full ePatient scholarship to Med-X including accommodation. Soon enough, the tweets started flying from others I follow with links of those of us selected for scholarships to the conference. In the Patient Engagement track, I am one of two Canadians, which is a huge honour in itself. Not only that, but to be alongside my friends Kim of Texting My Pancreas and Cherise, founder of Diabetes Social Media Advocacy or #dsma. These ladies are amazing people and hardcore influencers in the diabetes online community, so to be among them is amazing. We immediately started throwing tweets, direct messages and Facebook messages at one another.

Once the initial excitement wore off slightly, I started thinking rationally. School, money. Scouring the internet for the cheapest flights I could find with missing the least school possible. How I could get from San Francisco International Airport to the hotel, and how much it would cost.  Dude, I’ve never travelled by myself before . . . never mind in a place where my phone won’t work. Anyway, airfare had me scratching out numbers on a post-it. $550 is not bad for airfare going from the middle of one country to the coast of another in the least. But people, I work eight hours a week, sometimes a few more. I’m a full-time student. You know, the usual cards us students have to play.

I thought for days. I thought about making it work, about parting with probably what would end up being close to $1,000 for a three-day sprint of a trip. And I gave up on the idea, e-mailed the organizers of Med-X and reluctantly declined my scholarship. I Facebooked Kim and Cherise, Dia [who is basically my rationalizer] and Steve [one of my buddies in the Bay Area], and told them I was probably out.

Then at about 2 PM today my email bing’ed and there was a message from Larry Chu. Who offered an up-to $300 reimbursement toward my travel expenses to help enable me to attend Med-X. And my jaw dropped. I am already receiving conference registration, which is like $500, and a shared room at the Sheraton . . . and now they were offering to help offset the costs of traveling to the conference. This is a huge opportunity, and I’ve never done anything like this before. To attend Med-X with Kim, and hopefully Cherise, would be amazing.

I have another twenty-four hours or so to continue the considerations and make the decision. The Good Things, though, they keep coming, and I feel like how can I turn this opportunity down? Because it’s all aligning so amazingly–with so much of the cost being covered, with Cherise and Kim being on the roster, too, and with the haphazardity that I filled out the application, I feel that this must be aligning for a reason.

And how can I say no to the Good Things, right?

To be continued . . .