In 2012, Steve Richert and his wife Stefanie will embark on the adventure of a lifetime–three hundred and sixty five days of climbing with a goal of changing people’s perceptions of physical activity and being active with diabetes.  Diagnosed with type one when he was sixteen, I’m blessed to have Steve here today sharing his story of owning his diabetes through changing his perceptions, what he’s doing through climbing to educate and advocate for physical activity as an integral part of diabetes management, and what he’s going to be up to in 2012.

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When I woke up in a hospital bed 13 years ago and was told “You have Type 1 diabetes” I had no way of knowing how much it would change my life. Today, this condition I live with has shaped who I am and has caused me to reach greater heights (literally!) than I may have otherwise.

My first reaction to my diagnosis was that I determined to find a way to beat it. I couldn’t stand the idea of being dependent on medicine or hospitals. I wanted to be free—and the fact that the doctors all told me that there was no cure, made me decide that I had to simply find a loophole.

To start with, I decided that I would prioritize my health above everything else. As a 16 year old, that meant explaining my strict diet to other kids in the lunch room and checking my blood sugar before (and during) soccer games, always carrying food in case my sugar dropped low and not getting to treat eating as a recreational activity. Diabetes forces you to redefine your relationship with food—or lose your eyesight, your limbs, your kidneys and circulatory system—so there is a lot at stake!

Fitness became a big part of my life because the insulin injections that I took would work more effectively when I was active—playing sports and working out basically became medicine for me—both to help my body use the insulin I took and also as a means to combat stress. As I grew older and made it through college, the mental aspect of diabetes began to impact me—or at least to the point that I suddenly became aware of it.

Having a chronic illness carries with it some sort of routine that you must adhere to in order to stay well—and while this monotony can allow you a measure of success in dealing with the disease, it causes you to become tired mentally. Depressed. Bored. Hopeless.

I was staying healthy by just eating well and going to the gym, but I knew that I needed to escape the routine if I was going to progress—and that is when I found climbing. I had tried climbing when I was in high school as part of a Phys Ed unit. It initially appealed to me but I didn’t really know how to get into it. So I let it be. Once I revisited the sport after college, it became both a physical activity and mental stimulant. Climbing became my means to explore the world outside my comfort zone: my gateway to the unknown.

I followed the path that my passion led me down and I began learning how to teach others to climb and in 2009 I began working as a climbing guide. I get great enjoyment from being able to teach people to climb and showing them that they CAN do it. Taking something that seems impossible and making it possible is the magic of climbing. Some of the richest experiences I have had climbing have come from situations that held an unknown—that became a success only after the fact.

When I tell people what I do to stay healthy, they frequently smile and shake their head: “That’s fine for you, but I can’t do enough pull ups” or “I am terrified of heights—I could never do that”. Those are the people that I MOST want to take climbing, because turning that can’t into just did is a life-changing experience—and I want others to experience the power of the natural world like I have—through challenging themselves!

Recently, this exact initiative has been my focus. I decided that since I can’t bring people to the mountains, I can bring the mountains to the people—through film. Starting on January 1st 2012, my wife Stefanie and I will begin 365 days of climbing across North America, which we will be filming to make an in depth adventure documentary that will bring you into the high and wild places that we will be climbing! We are selling all of our possessions that won’t fit into our little red hatchback and setting off on a grand adventure. We want everyone to follow along. We will be blogging at www.livingvertical.org where you can keep up with our adventures and support our film if you would like to be part of what we are doing.

My goal at 16 was to overcome diabetes. 13 years later, I still have to take insulin injections 5-10 times daily. I still have to stick my finger 4-6 times a day. There still is no cure. But diabetes has forced me to problem solve, forced me to raise the bar and step up and out of my comfort zone and given me life experience that a pharmaceutical cure would have stolen from me! I consider myself blessed to have the opportunity to take on this challenge and I look forward to sharing my successes, struggles, failures and mountain-top experiences with you all during 2012!

Steve is the founder of Living Vertical as well as a climbing instructor.  In 2012, he and his wife Stefanie will be picking up their lives and heading out on the road to spend the year climbing and spreading the message that yes, you CAN do this!  LivingVertical is a non-profit organization that uses climbing and organic nutrition to empower and improve the lives of people living with type 1 diabetes.  To help Steve and Stefaine reach their goal, please consider donating to their project here (all kinds of cool incentives, too!), or contributing through donations of supplies they may need along the way, specifically climbing equipment, snacks and OneTouch blood glucose test strips–gotta keep our friends safe and healthy on the road!

As Steve’s mantra says . . . “Why wait for the ‘cure’?”  What are YOU doing to stay active and healthy with chronic disease and own it — not tomorrow, not next week, but today? Want to share your story?  E-mail me and join the journey.

Today is the last day of Invisible Illness week!  I had the pleasure of being able to interview Kerri from Six Until Me (see also: creator of the #KerriPower hashtag we use when doing awesome things together!) about life with diabetes and being an amazing advocate for people with diabetes.  Kerri is also the reason that I have so many awesome friends in the Diabetes Online Community [yay #KerriPower!]

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Me: Hi Kerri! I’m so stoked to have you here sharing your perspective! YAY FOR KERRI POWER! Tell us a bit about yourself!

Kerri: Hi back to you, Kerri!  (Nice name you have there.)  I’m really honored to be hanging out on your blog today.  I usually blog over at my diabetes blog, www.SixUntilMe.com, where I write about life with type 1 diabetes, my goofy little daughter, my husband, and those three cats that somehow ended up living in my house.  It’s a potluck of chaos.

You’re a pretty elite and FAMOUS diabetes blogger :] — how did you get started in the blogging world?
Awww, you are way too nice!  I started blogging back in May of 2005 at the prompting of my then-boyfriend/now-husband.  I had been talking to him about Clara Barton Camp (a summer camp just for girls with type 1 diabetes) and explaining how I missed that feeling of knowing other people who had diabetes, too. He told me about this mysterious “blaaaahging” thing, and I decided to give it a go.  I posted my first post on May 4, 2005 and I found other diabetes bloggers almost immediately.  And then other people with diabetes found me.  From there, it got kind of crazy, because now there are hundreds of people who are blogging about their diabetes or the diabetes of someone they love, and suddenly I’m not at a loss for people who also don’t make their own insulin.  It’s nice, having a community that really gets it.  I’m honored to be part of this.

What kind of impact has the Diabetes Online Community [DOC] had on your own perspective on living with and managing your diabetes?
The DOC has confirmed for me that I’m not alone.  Managing diabetes is one thing, but feeling like you’re the only person on the planet who has to do it is really isolating and depressing.  Finding this community has made me feel more confident that there is a good life to be had, even after a diabetes diagnosis.  There are so many people with diabetes who are doing incredible things – and incredibly normal things – that I feel inspired and empowered by this community every, single day.

It’s evident that advocacy for people with diabetes is important to you. What’s your favourite advocacy moment story? [I know it could be a tough one!]
Growing up, I didn’t have a lot of mainstream media examples of people with diabetes.  The only one I knew of was Julia Roberts’ character in Steele Magnolias, where she’s a woman with diabetes who decides, against the advice of her medical team, to have a child.  Long story short, her character has a baby and then dies soon-thereafter from diabetes complications.  This was my mental image of a woman with diabetes who wanted to have a baby.  Now, after several years of planning, more hard work than I could imagine, and one very closely-monitored pregnancy, I have a healthy and happy 17 month old daughter. Blogging about my pregnancy is one of my proudest moments because I hoped to be an example of hard work equalling a healthy outcome.

What kind of advocacy projects are you currently involved with?
I write daily on SixUntilMe, and I try to keep it raw and honest because I want to share what life is really like with type 1 diabetes.  I also speak regularly at diabetes and healthcare conferences, and I’m currently hard at work on a big project that will be announced next year … so stay tuned!  🙂

You’ve had diabetes for a long time, but has having diabetes brought you anywhere that you’d never have imagined?
These advocacy opportunities have me speaking about diabetes to the CEOs of companies, and to government officials in Washington.  I’ve traveled the country on a platform of humor and honest advocacy, honored to be speaking at different health-related events.  And in December, I’ll be headed to Dubai, UAE for the World Diabetes Congress, which is the farthest I’ll have ever been from home.  I never imagined that advocating for diabetes would bring me such opportunity.

How do you encourage other PWDs to get involved with the DOC?
I tell people that we’re here, all the time.  Any time of day, you can log onto the computer and find another person with diabetes hanging out on a blog, or on Twitter, or on Facebook.  Diabetes never sleeps, but thankfully, neither do PWDs and their caregivers.  😉  Just add your voice to the chorus; the bigger our community becomes, the more our health benefits.

If you could tell a person without diabetes just ONE thing about living with diabetes, what would it be?
There IS life after diagnosis.  You’ll be okay.
Thanks, Kerri, for sharing your thoughts here today!  [We need to have an epic meet-up full of iced coffee and cupcakes and Kerri Power!]

Kerri Morrone Sparling lives with her husband, Chris, and her ridiculously adorable pink-tutu wearing seventeen-month-old daughter.  Kerri was diagnosed with type one diabetes at the age of six and is an influential member of the diabetes community, both online and off.  Kerri blogs at Six Until Me.